Thrombotic Thrombocytopenia Purpura Registry

Information

Currently there is no consensus regarding the incidence of Thrombotic Thrombocytopenia Purpura (TTP) in Australia, its optimal management, clinical outcome, or the impact of complications, nor standardisation of laboratory assessments. Lack of data hampers the design of clinical interventional studies and laboratory testing.

The TTP Registry recruits patients through treating clinicians at multiple sites across Australia, collects data via a specifically designed web-based data collection form and aims to:

  • Better define the incidence, natural history and clinical outcome of TTP
  • Provide information on the range of therapeutic strategies being employed in the treatment of TTP patients
  • Explore factors influencing clinical outcomes
  • Better define optimal management of TTP patients
  • Inform and inspire future research, and coordinate future national research

 

Registry LocationAustralia and New Zealand
Registry Contact

TTP Project Officer

T: 1800 811 326
E: med-ttpregistry@monash.edu

Adding New Patients to Registry

The TTP Registry collects information from hospitals, clinical registries, and medical or health-related databases from Australia and New Zealand about patients who are being treated for TTP and other Thrombotic Microangiopathies (TMAs).

Please contact us for further information.

Please see the website for more information

monash.edu/medicine/sphpm/registries/ttp

Transfusion Research Unit – Current research registries

monash.edu/medicine/sphpm/depts-centres-units/transfusionresearch

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