Rare Diseases Clinical Research Network Contact Registry
The Rare Diseases Clinical Research Network (RDCRN) Contact Registry is a way for patients with rare diseases and their family members to learn about research studies they may be able to join. The RDCRN is designed to advance medical research on rare diseases by providing support for clinical studies and facilitating collaboration, study enrollment and data sharing. Through the RDCRN consortia, physicians, scientists and their multidisciplinary teams work together with patient advocacy groups to study more than 200 rare diseases at sites across the nation.
What are the benefits of joining the Contact Registry?
|Registry Location||International - available to Australians|
RDCRN NCATS Program Director
|Adding New Patients to Registry|
How to Join
|Please see the website for more information|