Neonatal Alloimmune Thrombocytopenia Registry

Information

Neonatal Alloimmune Thrombocytopenia (NAIT) at a glance …

Neonatal Alloimmune Thrombocytopenia (NAIT) is a condition that causes mild to serious haemorrhage in neonates and unborn babies due to low platelet count. This occurs where the mother had built up antibodies to the child’s platelets which cross the placenta and attack the child’s platelets. The information for the NAIT Registry will provide an important resource for women and children with NAIT, clinicians who treat NAIT, and our community. By collecting this data we will be able to better define the incidence, natural history and clinical outcomes of NAIT. There will be more information on the range of therapeutic strategies being employed in the treatment of NAIT and better defined optimal management of NAIT patients.

The aims of the NAIT Registry are to:

  • better define the incidence, natural history and clinical outcome of NAIT
  • provide information on the range of therapeutic strategies being employed in the treatment of NAIT patients
  • explore factors influencing clinical outcomes
  • better define optimal management of NAIT patients
  • inform and inspire future hypothesis-driven research in this area.
Registry LocationAustralia
Registry ParticipationOpt out - patients can decline to participate
Registry Contact

NAIT Registry Contact

T: 1800 811 326

E: sphpm.transfusion@monash.edu or med-nait@monash.edu

Adding New Patients to Registry

Patients are identified either by the treating clinician or by The Blood Service clinicians as a result of referral for specialised testing or provision of specialised products. Patient liaison and registration will take place in participating hospitals primarily through the treating clinical team.

If you would like more information or are interested in participating please contact med-nait@monash.edu or 1800 811 326.

Please see the website for more information

monash.edu/medicine/sphpm/registries/nait

Transfusion Research Unit – Current research registries

www.monash.edu/medicine/sphpm/depts-centres-units/transfusionresearch

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