Idiopathic Pulmonary Fibrosis Registry
What is IPF?
Why develop an Australian IPF Registry?
The Rare Lung Disease National Advisory Committee (previously known as PIVOT) provides over arching governance to the Registry. A global network has been established with support from the Royal Brompton Hospital in the UK and the University of California, San Francisco in the USA. Registry data sets have been designed specifically to complement and build on the experience and expertise of these recognised international centres.
What benefits does the Australian IPF Registry provide?
For more information please contact Sacha Macansh (Project Manager)
T: 02 9515 3996
|Adding New Patients to Registry|
How to join:
|Please see the website for more information|