Australian Motor Neurone Disease Registry
The Australian Motor Neurone Disease Registry is a de-identified disease based registry that facilitates the collection and storage of Motor Neurone Disease data. It includes information such as patient demographics, site of onset of disease, diagnosis date, treatment type, changes in disease, complications related to disease progression and the impact of new treatments and interventions for Motor Neurone Disease.
The main registry goals are:
If you would like to find out more about the MND Registry or have concerns about its functioning, please contact the Chair of the Steering Committee.
T: 03 4215 0713
|Adding New Patients to Registry|
Details on how to particpate in the registry can be found here:
|Please see the website for more information|