Australian Mitochondrial Disease Patient Registry

Information

The Mito Registry is a computerised system that will contain limited information about people suffering from mitochondrial disease (mito). The Mito Registry will aid diagnosis and track the incidence of mito.

Why is it needed?

Currently, no one in Australia has a complete understanding of the number of people with mito, what type of mito they may have, who they are and how to contact them. This is where the Mito Registry comes in.

This situation is echoed around the world, which is why the AMDF is working in collaboration with likeminded organisations around the world, including International Mito Patients (IMP), UMDF (USA), MitoCanada and many others, to include the Australian Mitochondrial Patient Registry in a global registry.

Registry LocationAustralia
Registry ParticipationVoluntary
Registry Contact

Australian Mitochondrial Disease Foundation (AMDF)

Rebecca Davis
T: (02) 8033 4113

E: rebecca.davis@amdf.org.au

Adding New Patients to Registry

Refer to the website for details on how to register.

Patients can self-register.

Please see the website for more information

amdf.org.au

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