Australian Mitochondrial Disease Patient Registry
The Mito Registry is a computerised system that will contain limited information about people suffering from mitochondrial disease (mito). The Mito Registry will aid diagnosis and track the incidence of mito.
Why is it needed?
Currently, no one in Australia has a complete understanding of the number of people with mito, what type of mito they may have, who they are and how to contact them. This is where the Mito Registry comes in.
This situation is echoed around the world, which is why the AMDF is working in collaboration with likeminded organisations around the world, including International Mito Patients (IMP), UMDF (USA), MitoCanada and many others, to include the Australian Mitochondrial Patient Registry in a global registry.
Australian Mitochondrial Disease Foundation (AMDF)
|Adding New Patients to Registry|
Refer to the website for details on how to register.
Patients can self-register.
|Please see the website for more information|