Australian Leukodystrophy Registry
The Australian Leukodystrophy Registry is led by the Massimo’s Mission Leukodystrophy Program at the Murdoch Children’s Research Institute. The purpose of the registry is to collect some basic information on individuals with a leukodystrophy or white matter condition and to unite people who are interested in taking part in leukodystrophy research. The information collected will be used to help advance scientific knowledge to inform future clinical trials.
Australian Leukodystrophy Registry Coordinator
T: 03 8341 6382
|Adding New Patients to Registry|
The database is open to anyone affect by a leukodystrophy or white matter condition. The data obtained is held securely and confidentially. To participate please contact the registry coordinator or complete the following survey:
|Please see the website for more information|