Australian Calciphylaxis Registry
Calciphylaxis is a rare, potentially life-threatening syndrome characterised by progressive and painful skin ulcerations associated with medial calcification of medium-sized and small cutaneous arterial vessels. Calciphylaxis primarily affects patients on dialysis or after renal transplantation; however, exceptions have been reported in patients with normal renal function and in association with chronic-inflammatory disease, malignancy or primary hyperparathyroidism. Clinically, calciphylaxis is associated with a high mortality of up to 80%. Superinfection of necrotic skin lesions with subsequent sepsis significantly contributes to this outcome. Many patients also suffer from cardiovascular disease characterised by calcification of larger arterial vessels.
Objectives of the proposed Australian Calciphylaxis Registry:
|Registry Location||Australia (no exclusion of non-Australian participants)|
For further information please contact: A/Professor Grahame Elder Department of Renal Medicine, Westmead Hospital
T: (02) 98456962
|Adding New Patients to Registry|
|Please see the website for more information|