Aplastic Anaemia Registry

Information

The Aplastic Anaemia (AA) Registry recruits patients through treating clinicians at multiple sites across Australia, collects data via a specifically designed web-based data collection form and aims to:

  • Better define the incidence, natural history and clinical outcome of AA.
  • Provide information on the range of therapeutic strategies being employed in the treatment of AA patients.
  • Explore factors influencing clinical outcomes.
  • Better define optimal management of AA patients.
  • Inform and inspire future research, and coordinate future national research.
Registry LocationAustralia
Registry ParticipationVoluntary
Registry Contact

Aplastic Anaemia Registry (AAR) Project Officer
Transfusion Research Unit
Department of Epidemiology and Preventive Medicine
Monash University
Alfred Hospital
Melbourne VIC 3004
T: 1800 811 326
E: aar@monash.edu

Adding New Patients to Registry

The AA Registry recruits patients through treating clinicians at multiple sites across Australia. Most of the hospitals within Australia who treat patients with aplastic anaemia are now approved to enter data into the registry. If you would like more information or are interested in participating in the AA Registry please contact the Registry Manager via email  aar@monash.edu.

Please see the website for more information

monash.edu/medicine/sphpm/registries/aar

Transfusion Research Unit – Current research registries

www.monash.edu/medicine/sphpm/depts-centres-units/transfusionresearch

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