What is this project?
Rare diseases have a big impact on child health and wellbeing around the world. Recognising the rights of these children, their families and areas of unmet need is an important task. Over the next year we will look at the needs of children living with rare conditions through the scope of the United Nations Convention on the Rights of the Child (UNCRC).
We hope the themes covered in each instalment will create a community conversation about children and their families, and the world of rare diseases.