UNCRC Series

16, Mar 2020

Rare Aware

The final part of the United Nations Convention on the Rights of the Child focuses on the fact that everyone should know about this Convention so that people can understand their rights and advocate for themselves and their child to ensure they have the best possible quality of life. The same applies to rare disease – everyone needs to know about rare diseases. This makes it easier for children living with a rare disease and their families and carers to get the care, support and understanding they need. Our hope for the future is that more people understand rare diseases, including medical professionals, policy makers and law makers to make sure that we can get the most from new technologies, research and collaborations globally, to give children living with a rare disease the best chance of a long and full life.

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