Equal access to medical services and research
Children with rare disease can have complex medical needs that can be difficult to manage within the public health system in Australia. Wait times to see private doctors can be long and this can result in families feeling that they have no choice but to pay for services in the public sector or be involved in research trials to get the best treatment in a timely manner. It is critical to ensure that all Australians have equal access to medical services and research that will best support their health and that communication supports people making the choices that are best for their child with a rare disease.
https://www.unicef.org.au/Upload/UNICEF/Media/Our%20work/childfriendlycrc.pdf – Article 35