Access to an education is a basic right for every child. We need to make sure children with complex health issues are given the support they need to thrive and reach their potential in education. This includes social, emotional and physical needs as well as their academic needs.
Teachers need support in how to cater for children with rare disease and how they can help families to access support services.
When a child isn’t able to access mainstream education, it is important that they continue not only to access the curriculum, but also to stay connected with their classmates and teachers, and to continue achieving their goals, and being challenged and stimulated away from the traditional classroom.