UNCRC Series

23, Oct 2019

Children have the right to be cared for by people who respect them. Children with rare diseases are frequently cared for, in part, by health care workers, so medical professionals must respect the religion, culture, and language of the child. Medical professionals must also make sure they are skilled enough to medically care for the child. Currently, many doctors require upskilling in the areas of rare diseases and genetics. Rare diseases may present themselves in any area of medicine, such as through a general practitioner, or a paediatric emergency presentation. As such, appropriate knowledge and confidence in rare disease diagnosis and treatment is required by all doctors. Caring for the child requires both medical skills and respect for the child.

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