Australian Genomics Survey – ‘How has COVID-19 impacted parents with children affected by genetic conditions’

29, Sep 2020

The ongoing global pandemic of COVID-19 has been impacting all of our lives – at home, at work and our health. We know that those who need to access care will be impacted more than many others and this includes members of the Genetic, Undiagnosed and Rare Disease community. 

 At Australian Genomics we would like to find out how COVID-19 has impacted parents with children affected by genetic conditions to get an accurate picture of your experiences.

 In the link below, there is a brief survey (it should only take about 10 minutes to complete) asking you some questions about you and how the pandemic has affected you and your access to healthcare.  Further information about the study and the nature of your participation is provided in the attached Plain Language Statement.


 Your participation is voluntary and your responses will be confidential. You can withdraw from this research at any time and without any consequences.

 If you have additional questions, please do not hesitate to get in contact with us:

Dr Ilias Goranitis, Ilias.goranitis@unimelb.edu.au  

Dr Stephanie Best, stephanie.best@mq.edu.au  

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