News

Prader-Willi Syndrome Australia would like to announce the recent addition of two valuable new resources to their national website www.pws.org.au PRADER-WILLI SYNDROME MEDICAL ALERTS KIT Australian Edition The kit contains an updated Medical Alert Booklet, wallet card and Hospital Introductory Notes. The booklet for medical professionals who are caring for people with PWS also includes […]

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My Epilepsy key looks like a normal USB, but when it is plugged into a computer the key contains access to information, education, resources and programs that will assist those with epilepsy help self-manage their condition. Read more on the Community News website article

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If you are looking for disability advocacy support try the NDIS search tool. It is a tool that can help you find an advocate, who is a person who is there to help. They can provide support, encourage you to make informed decisions and help people with a disability to learn about their human rights […]

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Healthy Australians will now be able to have their whole genome sequenced to reveal their risks of cancers and genetic conditions. The cost to patients will be more than $6000 with no Medicare rebate available. Read more on the ABC News article.

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@GaRDN_WA GaRDN promotes awareness and understanding of genetic and rare diseases and connects, informs, supports and empowers those affected by genetic and rare diseases.

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