Resources for Parents and Families

Resource guide for families

Knowing where to access information, services or support can play a vital role in optimising day-to-day quality of life. The Resource Guide for Families outlines services that may be of assistance and how you may access them. This guide has been developed to help families who have had difficulty locating services and resources when the need arises.

Directory of Genetic and Rare Disease Support Groups and Community Support Organisations in Western Australia

The purpose of the Directory is to provide genetic and rare disease support information to health professionals, individuals and Genetic and Rare Disease Support Groups. The aim of the Directory is to assist with referral for individuals and families with either a known or newly diagnosed genetic and/or rare condition or predisposition to these Genetic and Rare Disease Support Groups.

Directory of Genetic and Rare Disease Support Groups and Community Support Organisations in Western Australia
– this is frequently updated, if you find any out of date information please contact us .

Share This