Individuals and Families

The Genetic and Rare Disease Network (GaRDN) provides information to support individuals, families and carers living with genetic, rare and undiagnosed conditions.

GaRDN can assist with enquiries and resources relating to education, parenting, respite care, health services and other community support organisations.

Being diagnosed with a genetic or rare condition may be extremely difficult and confusing for you and your family. If you or a loved one has been diagnosed recently, GaRDN may be able to help you navigate through this complicated time.

Resources for Parents and Families

Information on how to access information, services and support

Information Packs

Information on a variety of topics related to living with a genetic and/or rare condition.

Carer Information

Information for carers

Undiagnosed Disease Resources

Information and resources on undiagnosed diseases

Genetic and Clinical Services

Clinical genetic services and genetic counselling information

Life Saving Drugs Program (LSDP)

Subsidised access, for eligible patients, to expensive lifesaving drugs

Looking for information on a condition?

Patient Registries

Patient and Clinical registries open to Australians

Clinical Trials

Clinical trials available to Australians

Research

Information on health research

Discover what your genome is and the technology behind it

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