The Genetic and Rare Disease Network (GaRDN) provides current and relevant genetics and rare disease information to individuals and family members affected by genetic and rare conditions. GaRDN also provides referrals to appropriate organisations to ensure that the wider community has information on the services provided by genetic and rare disease support groups.
In Australasia, there are hundreds of such groups each focusing on a specific genetic and/or rare condition. We can help put you in contact with these groups or provide the support and guidance to help you establish a new support group. GaRDN may also be able to provide information and support for conditions so rare that there is no specific local support group.
GaRDN conducts public information and awareness events to enable participants to network, increase their knowledge and skills and access up to date information about genetic issues. Forums for members are held on topics of interest or concern to enable member’s views to be represented to the wider community and State and Federal policy makers.
Promotion and advertising
GaRDN promotes the services at information seminars, public displays, conferences and community expos. We are able to assist member groups with the development of promotional resources such as information packages, brochures and event flyers from design through to printing.
GaRDN member groups are able to access an air-conditioned meeting room at suitable for board meetings, training seminars or group meetings. The room accommodates up to 45 people and includes a whiteboard and audio visual facilities and kitchen facilities.
IT support and computer access
GaRDN actively facilitates the development of genetic and rare disease support groups by providing access to expertise information and technology including office facilities to member groups to further enable and support their activities.
GaRDN offer the Link Line service which is published in our quarterly Newsletter The Advocate. The Link Line provides a supportive and confidential means of connecting individuals and families for whom no known genetic or rare disease support group exists.