The Chair of Genetic and Rare Disease Network invites committed members and representatives of genetic and rare disease support organisations to become members of GaRDN.
What is GaRDN?
The Genetic and Rare Disease Network (GaRDN) is a not for profit organisation based in Western Australia. GaRDN works to empower individuals and their families to reach positive health outcomes.
- provides information, support and referral services for genetic and rare disease patients and their families
- works to inform health professionals and the wider community on the perspectives and experiences of those affected by genetic and rare diseases.
- connects key stakeholders and service providers with people affected by genetic and rare diseases
- aims to make health professionals more aware of genetic and rare diseases.
- works to develop integrated, coordinated health care and support by stakeholders involved in the support and health care of people with genetic and rare diseases, their families and carers.
What is a Member of Genetic and Rare Disease Network?
Members play an important role in the development of the organisation and the election of the Board of Management.
a) A representative of a not for profit non-government organisation which has at its core activity that of a genetic or rare disease support group, and which supports the objects of the GaRDN may apply to be a Full Member,
b) A corporation or association or group which supports the objects of the GaRDN may apply to be a Corporate Associate Member.
Organisations can be community or philanthropic in nature; professional organisations of health workers participating in the treatment of genetic and rare disease patients; and organisations that conduct research into the nature, causes and treatments of genetic and rare diseases.
Membership rights and obligations
All applications for membership will be considered by the Board of Genetic and Rare Disease Network.
- Are eligible to attend and vote at Annual General Meetings.
- Are eligible to vote or to stand for election on the Board of Management.
- Are eligible to receive a copy of the GaRDN Annual Report.
Members must also agree to uphold the principles of GaRDN. These are:
Genetic and Rare Disease Network