Systemic advocacy

As a peak body, the Genetic and Rare Disease Network (GaRDN) advocates to influence outcomes in public policy and resource allocation within Government.

GaRDN also advocates to influence policies and practices of service agencies to ensure optimal results for people living with a genetic and/or rare condition.

Our systemic advocacy work includes media, participation in committees, submissions to government policy review processes and direct representation to politicians and other key decision-makers.

Individual advocacy

Individual advocacy can directly assist parents/families to resolve issues of specific relevance to their family. For more information read our Resource Guide for Families.

For further information about advocacy support please do not hesitate to contact us on 1300 770 995.

Advocacy in Genetics

Genetic Alliance Advocacy in Genetics Newsletter available at

Genetic Alliance’s How-To Guide

The guide is not specific to any genetic condition – Attending School with a Genetic Condition: A Guide for Parents

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